A Little Secret

I have anxiety so I can safely say I feel scared about 80% of the time. Being scared of “life” is interesting in a funny, crazy way.

Today, however, I am scared about something quite real. It’s not a fear as the result of a what if. It’s the genuine article.

Six and a half months ago I had surgery to remove my gallbladder. Nothing horrendous there. It was keyhole surgery and I healed quickly, on the outside. Inside, since then, I have been very, very sick. For many months my GP didn’t believe me and, of course, neither did my mum. It wasn’t until a few weeks ago when I spoke about how sick I’ve been feeling to my psychiatrist and HE made the suggestion I see a specialist, that anyone listened.
I realised then everyone else thought it was in my head.

Today is my first consult with the specialist. The first consult lasts a matter of minutes before being shuffled back out to the waiting room to make the “actual” appointment.
The fear takes hold of me when I know someone will be looking to see what the problem is and will ultimately figure out why I’ve been so sick. Of course, I have no idea what it could be.
I only know that whatever it is has been affecting my brain. That is what scares me.

Ever since my surgery I’ve been unable to think clearly and coherently like I used to. I can’t process new words nor remember their meanings. I forget words, simple words, and have trouble trying to prompt myself or others with hints or similes. It’s like the word has been erased from my mind completely. And no, as yet none of the words I’ve “lost” have come back.
Most people wouldn’t care about these things. I wish I were one of them. However, I’m not and I do care.
Writing is the only thing I have. It is the only satisfactory creative outlet I have. My words are what stand by me when no one else will. If I can’t write, I can’t think and if I can’t think I may as well be institutionalised.

My fear is real and no one knows, other than my psychiatrist, how painful the last six and a half months have been.

Regina's Song by David & Leigh Eddings

How I Spent My Vacation
By Twinkie

I spent my vacation in the bughouse, listening to the other buggies screaming and laughing just to pass the time away. Normal people can't seem to understand how nice it is to be nuts sometimes, and that's very sad. People out there in the world of normal have to face reality every day, and reality is usually flat and grey and ugly, and time only runs in one direction, and doorknobs can't talk. A true nutso doesn't have to put with that. We can make our world as beautiful as we want it to be, since it has to do what we tell it to do. 
   Isn't that neat?
   In the world of nuts, nothing is real, so we can change anything we don't like. If a day is beautiful we can make it last for a thousand years; if it's ugly, we can just throw it away. If the sun is too bright, we can send it to its room, and if the stars are too dim, we can tell them to burn more brightly, and they will, just to make us happy.
  That's what makes the world of nuts so much nicer than the world or normies. Our truth wags its tail and licks our fingers; their truth snarls, and it bites. 
  Sometimes, sometimes, those of us in the world of nuts think about the world of the normies, and we've pretty much decided that it might be sort of fun to visit it once in a while, but we certainly wouldn't want to live there. It's just too desperate and ugly, and the normies never seem to get the things they want, no matter how hard they try, and that's very sad. 
  People from the world of the normies used to visit us in the bughouse now and then, but they weren't really very much fun. They always looked so serious and worried and they almost never laughed. Normies just can't seem to see the world the way we buggies see it, so they can't even begin to see how funny it is. They couldn't seem to relax, and their eyes got all wild when the nutso down the hall started to practice screaming. Don't they know that screaming is a fine art? In the Olympic games of the world of nuts, a perfect ten scream wins the gold medal every time. 
  I've moved back to the world of the normies now, and I know that I'm supposed to be serious and never laugh, but sometimes -- sometimes -- I scream a little bit, just for old times' sake. I make it a point to scream politely, though. It's not nice to wake the neighbours in the grey world of the normies. A few quiet little screams aren't really all that disturbing, though, and I always seem to sleep better after I scream.
  And when I sleep, I sometimes dream of the world of nuts, and my doorknob sings to me, and my walls hold me tight, and I drift above the sky and look down at the desperate, grubby, ugly world of the normies where everybody is serious and worried, and never, never, ever smiles. 
  And I laugh.

Renee's Note: This is the best description I have ever read of mental illness. It's the most accurate, most heartfelt and, definitely, the most intuitive piece of work I have come across since being in the "bughouse".
I felt I had to share this as it truly captures how I feel most of the time. I am one of you, yet I am nothing like you.

Slipping

My arms are tired, my palms are sweaty and my feet keep slipping off the rungs. I'm losing grip of the ladder.

Now to confuse the hell out of myself, and possibly you too, I am sad because I can feel myself being dragged back into the nasty "depressive" state. Yet, I am proud of myself for feeling it before I hit rock bottom.
I'm scared because I really don't want to slip back but it's happening before my eyes and, perhaps, more so because I'm aware of it.

I really want to ask for help but I have reservations.
In the past when I haven't been totally incoherent and "sick" and have asked for help I was ignored. I wasn't "sick enough" to be seen, heard or helped. Would it be different now?
If nothing has changed all that will happen is my complete inability to hold onto the rungs. I will fall back into the pit of ugly, horrible despair. Loneliness and alienation will then follow.

So what's the plan to hopefully slow the rate at which I fall? Maybe even stop the final horrid descent altogether?
I need to be kind to myself. I can't make others be kind to me, that's just a stupid thought as I don't deserve that. But I can be kind to myself.
I can tell myself it's okay to slip, it's okay to find it hard to cope. I can tell myself it's okay that I'm not perfect. I can remind myself that it will take a long time for me to be able to deal with all of this without help.
I can talk myself down from the ledge and remind that part of me that I can get through it. Even when I feel so powerless and pathetically weak. I can tell myself that others do not understand so their comments are not always valid; most aren't trying to deliberately hurt me.

I will see my shrink of Friday afternoon, I just have to make it until then. I can fall apart when I walk into his room. I can admit to him that my seemingly random thought about being in hospital may have been an even earlier awareness of my possible descent.
To confuse everyone more, I am sad for writing this and yet I feel that I have made a big change in my attitude. I doubt many will see it, but I do and that's all the matters.

Just remember, it's about how you treat yourself not how others treat you.